Take action

The more numerous and better organised we are, the less our medical problem can be ignored.

Contribute by Becoming a member of the SCDS Society

Empower yourself by reading the only book on this condition written so far.

If you want to join a group for discussions with other patients, we administrate this Facebook group.

Contact the SCDS society


The SCDS Society is non-profit, and all financial support will be used towards our mission